News & Stories

Legacy Building – The Ziegele Family Experience

April 30, 2023 Comments Off on Legacy Building – The Ziegele Family Experience

When Dale and Judy Ziegele of Ridgefield, WA, received Dale’s diagnosis of ALS in September of 2022 at the age of 79, their focus changed.   Dale and Judy have been…

FDA Approves new drug: Qalsody (tofersen)

April 25, 2023 Comments Off on FDA Approves new drug: Qalsody (tofersen)

Blog post from the ALS Association. View original source. Current status On April 25, 2023, the FDA approved tofersen under the agency’s accelerated approval pathway for the treatment of people living…

Bruce Stoddard of Vancouver, Washington

April 24, 2023 Comments Off on Bruce Stoddard of Vancouver, Washington

One day, Bruce Stoddard started to notice his right ankle acting strange, as if it was asleep all the time. He spent a year and a half trying to find…

Larry Holtry of Beaverton, Oregon

April 24, 2023 Comments Off on Larry Holtry of Beaverton, Oregon

Larry Holtry is a positive guy. He always has been. He spent over 30 years in a lucrative sales career, where a positive attitude is essential to be successful. When…

Scholarship Opportunity: Hope Loves Company

April 18, 2023 Comments Off on Scholarship Opportunity: Hope Loves Company

Hope Loves Company is a nonprofit organization that provides emotional and educational support to children and young adults who have or had a loved one battling Amyotrophic Lateral Sclerosis (ALS)…

More Than Just Food: The Dietitian’s Critical Role in ALS

April 14, 2023 Comments Off on More Than Just Food: The Dietitian’s Critical Role in ALS

Multidisciplinary care, a term for when professionals from a range of disciplines work together to deliver comprehensive care, is incredibly valuable for people living with ALS. At an ALS Clinic,…

Researchers See Path Forward for Pridopidine Despite Missing HEALEY Endpoints

April 14, 2023 Comments Off on Researchers See Path Forward for Pridopidine Despite Missing HEALEY Endpoints

Blog post from the ALS Association. View Original Source. The Sean M. Healey & AMG Center for ALS at Massachusetts General Hospital and the Northeast ALS (NEALS) Consortium announced topline results…

Care Services Digest – April 2023

April 13, 2023 Comments Off on Care Services Digest – April 2023

Virtual Caregiver Bootcamp There are bootcamps in the spring and fall, the dates for 2023 are: April 17th – 21st, 2023: Learn more and register here. October 16th – 20th,…

Ruth Greiner of Coos Bay, Oregon

April 12, 2023 Comments Off on Ruth Greiner of Coos Bay, Oregon

Dedicated Teacher, Mother and Grandmother Ruth was diagnosed with primary lateral sclerosis (PLS) at OHSU in 2003 while working as an elementary school teacher in Coos Bay, Oregon. After 31…

Check out our 2022 Impact Infographic

April 11, 2023 Comments Off on Check out our 2022 Impact Infographic

Read below for more insight from Care Services Director Cassy Adams So, what does 356 home visits really mean?  It means that you have five care services coordinators – going out…