News & Stories

Christine Acuna and Izzy Canepa

Education Through her Father’s Legacy: Izzy Canepa 

May 23, 2024 Comments Off on Education Through her Father’s Legacy: Izzy Canepa 

Spotlight on the Elinore Nudelman ALS College Savings Program Michael “Mike” Canepa passed away in December of 2023 after a several-year battle with ALS. His daughter, 12-year-old Isabella “Izzy” Canepa,…

Deirdre Leiner, a person living with ALS

Living Well with ALS: Deirdre Leiner

May 21, 2024 Comments Off on Living Well with ALS: Deirdre Leiner

Deirdre Leiner wasn’t shocked when she received her ALS diagnosis in September 2023. Her father, grandfather, and even great-grandfather all had the disease. Familial ALS is rare and comprises 5-10%…

Care Services Digest graphic

Care Services Digest – May 2024

May 20, 2024 Comments Off on Care Services Digest – May 2024

Family Fun Day: Save the Date!   We invite people living with ALS and their families to join us for the following Family Fun Day Events this summer/fall. We hope you’ll…