News & Stories

New support group: In-person grief support

May 2, 2023 Comments Off on New support group: In-person grief support

A new, in-person grief support group begins Thursday, May 11, 2023. This session will take place from 1:00 -2:30 PM at the Lake Oswego Adult Community Center.  ALS Association of Oregon…

Legacy Building – The Ziegele Family Experience

April 30, 2023 Comments Off on Legacy Building – The Ziegele Family Experience

When Dale and Judy Ziegele of Ridgefield, WA, received Dale’s diagnosis of ALS in September of 2022 at the age of 79, their focus changed.   Dale and Judy have been…

FDA Approves new drug: Tofersen

April 25, 2023 Comments Off on FDA Approves new drug: Tofersen

Blog post from the ALS Association. View original source. Current status On April 25, 2023, the FDA approved tofersen under the agency’s accelerated approval pathway for the treatment of people living…

ALS Youth Challenge

April 25, 2023 Comments Off on ALS Youth Challenge

On ALS Youth Action Day — kids, teenagers, and young adults across the country unite to take a stand against ALS. You can write letters, tell stories about your ALS…

Bruce Stoddard of Vancouver, Washington

April 24, 2023 Comments Off on Bruce Stoddard of Vancouver, Washington

One day, Bruce Stoddard started to notice his right ankle acting strange, as if it was asleep all the time. He spent a year and a half trying to find…

Larry Holtry of Beaverton, Oregon

April 24, 2023 Comments Off on Larry Holtry of Beaverton, Oregon

Larry Holtry is a positive guy. He always has been. He spent over 30 years in a lucrative sales career, where a positive attitude is essential to be successful. When…

Claire Sharp of Medford, Oregon

April 20, 2023 Comments Off on Claire Sharp of Medford, Oregon

Claire Sharp, along with Team We Are Sharp, is one of the many participants who will be joining the 2023 Walk to Defeat ALS for the very first time. Claire…

Scholarship Opportunity: Hope Loves Company

April 18, 2023 Comments Off on Scholarship Opportunity: Hope Loves Company

Hope Loves Company is a nonprofit organization that provides emotional and educational support to children and young adults who have or had a loved one battling Amyotrophic Lateral Sclerosis (ALS)…

More Than Just Food: The Dietitian’s Critical Role in ALS

April 14, 2023 Comments Off on More Than Just Food: The Dietitian’s Critical Role in ALS

Multidisciplinary care, a term for when professionals from a range of disciplines work together to deliver comprehensive care, is incredibly valuable for people living with ALS. At an ALS Clinic,…

Researchers See Path Forward for Pridopidine Despite Missing HEALEY Endpoints

April 14, 2023 Comments Off on Researchers See Path Forward for Pridopidine Despite Missing HEALEY Endpoints

Blog post from the ALS Association. View Original Source. The Sean M. Healey & AMG Center for ALS at Massachusetts General Hospital and the Northeast ALS (NEALS) Consortium announced topline results…