News & Stories

Claire Sharp with her Walk ALS team, "We Are SHARP!"

Living Well with ALS: Claire Sharp

March 8, 2024 Comments Off on Living Well with ALS: Claire Sharp

Claire emphasizes ALS awareness and a value of honest communication through participation in the annual Walk ALS.  Claire Sharp is thrilled to be joining her second-ever Walk ALS in 2024,…

Ron and his wife smile with their arms around each other in an outdoor scene

Ron Newbury: How You Can Contribute to the Fight Against ALS

February 14, 2024 Comments Off on Ron Newbury: How You Can Contribute to the Fight Against ALS

67-year-old Ron Newbury, a native of Whitefish, Montana, moved back to Oregon in 2020. Ron has always embodied a passion for the outdoors and sports. Whether it was running marathons,…

Dine with Purpose!

January 16, 2024 Comments Off on Dine with Purpose!

Everything you need to know to enjoy some delicious food while giving back to ALS Northwest this winter: Tuesday, January 30th: Oakshire Beer Hall in Northeast Portland is donating $1…

ALS Northwest’s Bereavement Program

January 12, 2024 Comments Off on ALS Northwest’s Bereavement Program

In 2023, ALS Northwest launched our Bereavement Program, which provides grief support services to people in our community.  Why did we establish a Bereavement Program? Thanks to our strong community…

Navigating Grief During the Holidays

December 12, 2023 Comments Off on Navigating Grief During the Holidays

A Special Message from Bereavement Coordinator Rebekah Albert The Holiday season can be an especially hard time for many people. Family gatherings and holiday celebrations can amplify grief and loss,…

Cathy Davies: Caregiver Spotlight

November 29, 2023 Comments Off on Cathy Davies: Caregiver Spotlight

Cathy Davies and Sue Mullenburg have been together for 20 years. This couple is an inspiring example of the sacrifices partners make in the face of an ALS diagnosis. They…

OHSU Brain-Computer Interface Research Study: Recruiting Participants

November 28, 2023 Comments Off on OHSU Brain-Computer Interface Research Study: Recruiting Participants

Dr. Melanie Fried-Oken is researching ways to help people with severe disabilities use brain-computer interface (BCI) technology to communicate. When using the BCI, people wear an electrode cap (like a…

A New Way to Give: MyWalgreens Rewards

November 9, 2023 Comments Off on A New Way to Give: MyWalgreens Rewards

There’s an easy new way to support ALS Northwest! Until December, 31, 2023, you can donate your Walgreens cash rewards to ALS Northwest. Log in to your myWalgreens account, search…

National Guidelines for ALS Genetic Testing, Counseling Published

November 7, 2023 Comments Off on National Guidelines for ALS Genetic Testing, Counseling Published

Researchers at The Ohio State University Wexner Medical Center and College of Medicine have developed and published guidelines for genetic testing and counseling for people living with ALS. These evidence-based,…

Donna Bogardus: US Navy Veteran Finds Strength in ALS Northwest Community 

November 3, 2023 Comments Off on Donna Bogardus: US Navy Veteran Finds Strength in ALS Northwest Community 

I met Donna and Brian Bogardus while settling into their new 55 and older community in Fairview, Oregon. Both are US Navy veterans, who recently moved from Klamath Falls to…