News & Stories

Care Services Digest – May 2024

Family Fun Day: Save the Date!  

We invite people living with ALS and their families to join us for the following Family Fun Day Events this summer/fall. We hope you’ll join us in celebrating family, making memories, and connecting with one another. Food and beverages will be provided at each event, including fun activities for the whole family!  

Central Oregon: Saturday, September 7, 12-2pm, Picnic in the Park – Discovery Park Picnic Shelter, 1315 Northwest Discovery Park Drive, Bend 97703 

Portland Metro: Saturday, September 7, 12-4pm, Oregon Museum of Science and Industry (OMSI) – 1945 SE Water Ave., Portland OR 97214 

Southern Oregon: Saturday, September 28, 12-2pm, Picnic in the Park – Reinhart Volunteer Park, Harry and David Shelter, 1690 SW Webster Rd. Grants Pass, OR 97526 

Willamette Valley: Sunday, October 13, 1-5pm, Oregon Coast Aquarium Newport – 2820 SE Ferry Slip Road, Newport OR 97365  

Registration and details are coming soon! 

Research Symposium: Save the Date!  

Join us on Saturday, October 5th from 1-4pm, to learn about the latest in ALS research. This even features live virtual presentations from local and nationally-esteemed ALS researchers and clinicians.  

The ALS Research Symposium is a completely FREE informative community event. Anyone who wants to learn more about ALS and ALS research is welcome to join in-person or watch the livestream. You don’t need to be an ALS expert to take advantage of this once-a-year opportunity to meet and hear from world-renowned researchers. 

Registration and details are coming soon!

Need a Helping Hand?

Helping Hands Volunteer Program 

Through this program, we match trained volunteers with families impacted by ALS. Volunteers can help with all sorts of tasks including pet care, yard work, errands, companionship, and hobbies. Reach out to Volunteer Coordinator Annie Teer with any questions: or 503-501-4804. Learn more about our volunteer programs.

Mentor Support Program 

Caregivers are matched with a mentor who’s “been there” through our mentor support program. New or current caregivers will be connected with a former caregiver who has already lost a loved one that can share experiences and support. Your mentor may not have all the answers, but they can undoubtedly relate to the challenges of supporting a person diagnosed with ALS. Reach out to Volunteer coordinator Annie Teer with any questions at or 503-501-4804.

To discuss any of these options and more, don’t ever hesitate to reach out to your ALS Northwest local Care Coordinator, or contact us at

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