News & Stories

Deirdre Leiner, a person living with ALS

Living Well with ALS: Deirdre Leiner

May 21, 2024 Comments Off on Living Well with ALS: Deirdre Leiner

Deirdre Leiner wasn’t shocked when she received her ALS diagnosis in September 2023. Her father, grandfather, and even great-grandfather all had the disease. Familial ALS is rare and comprises 5-10%…

Glenn Freese sitting in his home

Living Well with ALS: Glenn Freese

April 1, 2024 Comments Off on Living Well with ALS: Glenn Freese

Glenn Freese is a people-person and musician who now advocates for those in assisted living facilities.  Like many people living with ALS, Glenn noticed symptoms years before his official diagnosis.…

Alice McGrew smiles

Living Well with PLS: Alice McGrew

March 28, 2024 Comments Off on Living Well with PLS: Alice McGrew

I recently met Alice McGrew at her home in Vancouver, WA, along with her service dog Cindy Lou. From the table in her dining room, we enjoyed a serene view…

Claire Sharp with her Walk ALS team, "We Are SHARP!"

Living Well with ALS: Claire Sharp

March 8, 2024 Comments Off on Living Well with ALS: Claire Sharp

Claire emphasizes ALS awareness and a value of honest communication through participation in the annual Walk ALS.  Claire Sharp is thrilled to be joining her second-ever Walk ALS in 2024,…

Sherry LaSalle in her living room

Living Well with ALS: Sherry LaSalle

March 1, 2024 Comments Off on Living Well with ALS: Sherry LaSalle

Sherry’s story highlights the importance of support systems and proactivity in navigating this challenging disease. A California native, Sherry LaSalle moved to Oregon in November of 2020 at the behest…

Ron and his wife smile with their arms around each other in an outdoor scene

Ron Newbury: How You Can Contribute to the Fight Against ALS

February 14, 2024 Comments Off on Ron Newbury: How You Can Contribute to the Fight Against ALS

67-year-old Ron Newbury, a native of Whitefish, Montana, moved back to Oregon in 2020. Ron has always embodied a passion for the outdoors and sports. Whether it was running marathons,…

Cathy Davies: Caregiver Spotlight

November 29, 2023 Comments Off on Cathy Davies: Caregiver Spotlight

Cathy Davies and Sue Mullenburg have been together for 20 years. This couple is an inspiring example of the sacrifices partners make in the face of an ALS diagnosis. They…

Donna Bogardus: US Navy Veteran Finds Strength in ALS Northwest Community 

November 3, 2023 Comments Off on Donna Bogardus: US Navy Veteran Finds Strength in ALS Northwest Community 

I met Donna and Brian Bogardus while settling into their new 55 and older community in Fairview, Oregon. Both are US Navy veterans, who recently moved from Klamath Falls to…

Scott Mclagan: A Dedicated ALS Caregiver

October 12, 2023 Comments Off on Scott Mclagan: A Dedicated ALS Caregiver

Scott and Stephanie Mclagan live outside of Bend, Oregon. Scott and Stephanie have been married for over five decades. Scott has cared for Stephanie since her ALS diagnosis in 2009.…

Dorothy Piazza: Resilience and Hope in Rural Oregon

October 12, 2023 Comments Off on Dorothy Piazza: Resilience and Hope in Rural Oregon

Dorothy Piazza has lived in John Day, Oregon since 1989. When she was diagnosed with ALS in October 2022, she worried that she would have to move somewhere else because…