News & Stories
Dr. Melanie Fried-Oken is researching ways to help people with severe disabilities use brain-computer interface (BCI) technology to communicate. When using the BCI, people wear an electrode cap (like a…
Researchers at The Ohio State University Wexner Medical Center and College of Medicine have developed and published guidelines for genetic testing and counseling for people living with ALS. These evidence-based,…
Join us here on November 4 at 1 p.m. for an educational afternoon to learn about the latest in ALS research with live presentations from local and nationally esteemed ALS…
Did you know that we host an annual ALS research symposium where some of the nation’s foremost researchers come together to share the most promising findings from the hundreds of…
Donors play a crucial role in the development of new ALS medications, such as Tofersen. We need the support of our friends and family to continue these efforts. By giving today,…
Vashti Ross passed away on Tuesday, July 11th. She was incredible champion for our mission and will be missed. Vashti Ross was diagnosed with ALS in 2014. Knowing that research…
Blog post from the ALS Association. View original source. Current status On April 25, 2023, the FDA approved tofersen under the agency’s accelerated approval pathway for the treatment of people living…
Blog post from the ALS Association. View Original Source. The Sean M. Healey & AMG Center for ALS at Massachusetts General Hospital and the Northeast ALS (NEALS) Consortium announced topline results…
Blog post from the ALS Association. View Original Source. In the summer of 2014, millions of us took part in the ALS Ice Bucket Challenge. Celebrities, friends and family members all…
In the summer of 2014, millions of us took part in the ALS Ice Bucket Challenge. Celebrities, friends and family members all dumped ice on their heads to help raise…