News & Stories

National Guidelines for ALS Genetic Testing, Counseling Published

November 7, 2023 Comments Off on National Guidelines for ALS Genetic Testing, Counseling Published

Researchers at The Ohio State University Wexner Medical Center and College of Medicine have developed and published guidelines for genetic testing and counseling for people living with ALS. These evidence-based,…

Care Services Digest – August 2023

August 16, 2023 Comments Off on Care Services Digest – August 2023

August Educational Talk: End of Life Choices Oregon Aug 30, 2023 03:00 PM (PST) Sue Porter, of End of Life Choices Oregon will discuss end of life options for People living…

ALS Family Fun Days

August 6, 2023 Comments Off on ALS Family Fun Days

People living with ALS and their families are invited to join us for the following Family Fun Day Events. We hope you will join us to celebrate family, make new…

Care Services Digest – May 2023

May 8, 2023 Comments Off on Care Services Digest – May 2023

Check out the Spring 2023 Care Services Newsletter. Inside you will find:Legacy Building: learn about how people with ALS have built their legacy and what they have learned from their…

More Than Just Food: The Dietitian’s Critical Role in ALS

April 14, 2023 Comments Off on More Than Just Food: The Dietitian’s Critical Role in ALS

Multidisciplinary care, a term for when professionals from a range of disciplines work together to deliver comprehensive care, is incredibly valuable for people living with ALS. At an ALS Clinic,…

Care Services Digest – April 2023

April 13, 2023 Comments Off on Care Services Digest – April 2023

Virtual Caregiver Bootcamp There are bootcamps in the spring and fall, the dates for 2023 are: April 17th – 21st, 2023: Learn more and register here. October 16th – 20th,…

Check out our 2022 Impact Infographic

April 11, 2023 Comments Off on Check out our 2022 Impact Infographic

Read below for more insight from Care Services Director Cassy Adams So, what does 356 home visits really mean?  It means that you have five care services coordinators – going out…

Give Financial Assistance to People Living with ALS

March 1, 2023 Comments Off on Give Financial Assistance to People Living with ALS

Matching Gift Success!Thanks to three special matching gift supporters, we raised $6,418 on March 31st. There’s still time to support this program – give today and become a leader in…

Physical Therapists Offer Solutions to ALS Mobility Challenges

October 4, 2022 Comments Off on Physical Therapists Offer Solutions to ALS Mobility Challenges

October is National Physical Therapy Month, a time to shine a spotlight on the work physical therapists do and recognize the vital role they play in helping their patients manage challenges…