Newly Diagnosed

You are not alone.

Receiving an ALS diagnosis is challenging and overwhelming. There is so much to know, a great deal to consider, and typically a host of questions. While no two people with ALS are alike or will experience the condition the same way, there is a great deal of collective knowledge and wisdom available from health care providers, people with ALS, family members and caregivers.

Register with ALS Northwest

This is where you begin your personalized relationship with one of our highly trained ALS Care Services Coordinators, completely free of charge. See our Care Services here.

Who can register? ALS Northwest serves people with Amyotrophic Lateral Sclerosis (ALS), Primary Lateral Sclerosis (PLS), Progressive Bulbar Palsy (PBP) and Progressive Muscular Atrophy (PMA).

Why register? The team of professional Care Service Coordinators provide expert ALS advice and assistance free of charge. The office is open Monday through Friday 9am-5pm. Call 503-238-5559 or email CareServices@ALSOregon.org to get started today. See our staff here.

Check out our pages answering the common questions of: What is ALS? Who gets ALS?

Watch our series of educational videos and webinars to learn more about the disease, living with ALS, and treatment options. Learn more...

The National ALS Registry may be the single largest ALS research project ever created and is designed to identify ALS cases throughout the United States. Most important, the Registry is collecting critical information about the disease that will improve care for people with ALS and help us learn what causes the disease and how it can be treated.

Learn About Insurance, Medicare, and Veteran Coverage

It is important to learn about your insurance coverage. You may want to contact your medical insurance provider and request that you be assigned a case manager to be your primary point of contact.

If you served in the military, contact the Department of Veteran Affairs (800-827-1000) about eligibility for health, vocational rehabilitation and disability programs and services.

Learn about Medicare >   Veteran Resources >

ALS Northwest collaborates with some of the best ALS physicians in Oregon to help ensure that people living with ALS have access to specialized care at ALS clinics and ALS certified treatment centers. 

Support Groups provide opportunities for people living with ALS and their loved ones to share their personal experiences and learn more about strategies for preserving independence and maximizing quality of life. All Support Groups are facilitated by our professional Care Services Coordinators with extensive experience in ALS.