National Amyotrophic Lateral Sclerosis (ALS) Registry

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Every person living with ALS in the United States can enroll in the National ALS Registry! The National ALS Registry may be the single largest ALS research project ever created and is designed to identify ALS cases from throughout the entire United States.

Most importantly, the Registry is collecting critical information about the disease that will improve care for people with ALS and help us learn what causes the disease, how it can be treated and even prevented.

Learn more about the National ALS Registry.

Obtenga más información sobre el Registro Nacional de ELA en español aquí.

Learn about the National ALS Biorepository.