Our Mission Vision and Values
To discover treatments and cures for ALS, and to serve, advocate for, and empower people affected by ALS to live their lives to the fullest.
Our Core Values:
COMPASSION – INTEGRITY – URGENCY
Guiding Principles are:
- People with ALS and their families come first
- One team, one vision, one mission
- Accountability and transparency
- Diversity and inclusion
- Open communication and dialogue
Our Strategic Outcomes:
- Recognized interdependence between care and research.
- People with ALS and their families have:
- Access to consistent care, treatment and services
- Resource and support services that enhance quality of life
- Quality care and support leveraged by collaboration with partners
- Discover new life-extending treatment:
- Drive worldwide research agenda with urgency and boldness to improve outcomes for people with ALS
- Collaborate with partners in a comprehensive and diverse research model
- Facilitate the rapid development of new treatment options to extend and enhance quality of life while seeking a cure.
Our Origin Story
Before incorporating as The ALS Association Oregon and SW Washington Chapter, our organization was preceded by The Burdell Memorial ALS Foundation. The Foundation was formed to remember Richard Burdell, a Portland jazz and pop musician who died June 21, 1998, after a 14-year struggle with ALS. Richard's sister, Cindy Burdell, is our Founder and now resides in Seattle, Washington, close to family and friends. Read The Oregonian story about Richard and his battle with ALS here.